Monday, March 22, 2010

Baby steps

~Rianne's walking diary~

Feb 2010, at the hospital for the bi-annually checkup with the genetic specialist -
Dr Lai was the least impressed by Rianne's slow motor skills development when she found out Rianne has not even stood up for the very first time. Her comment was that she will have to refer Rianne to a therapist if she have not started walking by 18 months old.

Days before 16 Feb 2010,
We were trying some of the clothes on Rianne which Aunty Pooja had bought for her birthday. We made her stand up while checking herself through the dressing table mirror in my bedroom. She barely stood for a few minutes and her knees weakened..

End Feb to first week of March 2010,
Rianne's been standing everyday after her baths, when Granny finished dressing her. She would stand still, put her hands together and giggled smugly at her reflection from the mirror.

2nd week of March 2010,
My brother's friend got Rianne a toy ride, and she was so into it all day and night! She would keep bugging us to put her on the ride, and when she's on it, she'l hit the button where the sound of a train would come "toot, toot, toot.." Started to move herself all over the floor, by swaying her bottom left to right, right to left on the floor.

Week of 13 March 2010,
Rianne's baby cousin, Joelle came over to stay with her mummy as my brother-in-law was away on a business trip for 2 weeks. Both babies were fighting over everything, toys, attention and competing to stand. With my mum supporting her arms, Rianne was taking small steps in the living room.

3rd week of March 2010,
Rianne could now walk with someone supporting her arms, from the bedroom entrance to the living room! She was particularly happy to walk when I stood at a distance from her, and urged her to come to me. She would giggle and walk at the same time; especially when she knows that all eyes are on her at the shopping mall. Walking was like a breeze for Rianne in all the comfy shoes she own.

26 March 2010, at Kidz World in the Zoological Gardens - Rianne was just like all the other kids, playing at the water playground. She stood in the water and enjoyed having her feet soaked! The highlight came when she went down a slide gushing with water, FUN!

31 March 2010 and onwards, anticipating the day when we no longer need to hold Rianne's arms and she would walk like a big kid!! Till then, ciao!!

Thursday, March 4, 2010

Reflections

My mum always say Rianne takes after my bad temper. I thought , "hell'ya, you're right!"

It is not surprising if you see a mini-you in the form of your kids, as we adults tend to be most at ease and many a times let ourselves loose in front of the people we are closest with; and these small guys tend to pick up things in less than a finger snap!

I wonder if anyone remember the incident where a father actually bashed his biological daughter to death when the little girl picked up his cigarettes and put that into her mouth. Tell me, isn't that an impersonation of what she see everyday? And from someone of that seniority and familiarity, it only made sense to the 2 year old toddler that "if daddy is doing that, then there is nothing wrong with me following his actions."

Out of late, I see many parents smoking in front of their little ones without the least consideration about the harmful effects the 2nd-hand smoke could bring to their children, let alone be conscious about how their offspring could actually pick up this unhealthy habit from them. Now, I am certain that the generation of smokers would go on and on, regardless of how agressive the smoking bans are with irresponsible parents.

I saw this Muslim family of 5 kids, all boys if I remember correctly, with their parents at the market on a Sunday morning. The father and mother were gakking to each other with their hands, they are earing impaired I so assume. It immediately struck me as to how irresponsible the parents by having such a big family, when their disability could very likely deviate them from being able caregivers! That's not just it. The father were smoking while pushing the baby pram with 2 of the boys in it. I was totally disgusted.

I don't know how can anybody be so irresponsible, and bring misery to the innocent lives if you yourself have also been brought into this world by parents who spare no thoughts of the consequences of your existence. I am not afraid to admit that I harbour lots of guilt towards Rianne, as I had gave her a chance to live, but at the same time brought her misery with the genetic disease (NF 1) which she inherited from Papa D.

Rianne has the disease, and if her future husband also has NF; they are bound to pass down the disease to their children genetically. But if Rianne marry a 100% healthy guy, the chance of my future grandchildren having NF will be 50% instead. This means that the children Rianne were to bear, will have a likelihood of being like their mummy, getting a genetic disorder without a choice.

Whose fault is that? Whose responsiblity is that to prevent such a tragedy from happening? The adults.. the so-called parents.. the man & woman whose actions were led by their bodies, and not by the brains.

Shame on them, shame on me.. :(